Propionic Acidemia | UPMC Children's Hospital Pittsburgh
Propionic Acidemia | UPMC Children's Hospital Pittsburgh
Nov 23, 2015
chp.edu
“It felt like we had won the lottery, for once in our family’s life - and actually all the families with propionic acidemia. It was a WIN. Now, as a parent, I could picture a lot of things that I really couldn’t see before in her future.” 👀 Watch to learn how Lume Deodorant gave this little girl with a rare disorder a shot at a normal childhood. | Shannon Klingman, M.D.
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“It felt like we had won the lottery, for once in our family’s life - and actually all the families with propionic acidemia. It was a WIN. Now, as a parent, I could picture a lot of things that I really couldn’t see before in her future.” 👀 Watch to learn how Lume Deodorant gave this little girl with a rare disorder a shot at a normal childhood. | Shannon Klingman, M.D.
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Patient needs are at the center of our work every day, and listening to the patient community is a top priority for us. Propionic acidemia (PA) is a #RareDisease in which the body is unable to process certain parts of #proteins and #lipids properly, which can cause serious health problems. For those caring for someone with PA, the condition becomes a central part of their lives. In this video, hear from Honey Stecken, who recently shared with us her story of caring for her daughter, Maren, with
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